How kidney patients are suffering
“Every day I lie to comfort my wife that everything is going to be fine but in reality things are falling apart,” says Babu Raja Rajthala. Rajthala had to spent nearly all his wealth when his wife, Kesari, 42, had to undergo renal dialysis for around two years before she could get a new kidney. In the two years, Rajthala had already sold all his properties back home in Hetauda for his wife’s treatment. The long stay in the expensive capital city compounded his financial woes. By the time of the transplant, Rajthala was penniless and he could not even buy post-transplant medicines.
The couple’s children are suffering too. “They can’t continue their college education because I can no longer pay their fees,” Rajthala laments.
It could have been a different story if the Rajthala family had access to the government grant for kidney failure patients right at the start. His wife received the government grant only after seven months of the operation, by which time even her new kidney was damaged. To make the kidney fully functional again, she has to undertake another round of expensive treatment, and Rajthala family simply does not have the money.
The Rajthalas are far from the only sufferers. According to the Health Ministry, around three million Nepalis suffer from kidney-related diseases, and there are currently more than 30,000 patients whose kidneys have failed. That number increases by 3,000 every year.
Renal disease is considered dangerous in Nepal, as the patients can live only if they can afford the expensive treatment.
Limited options
Those diagnosed with kidney failure have only two options—to undergo dialysis for the rest of their lives or get another kidney. Both processes are costly. Dialysis—in which an external machine temporarily replicates the functions of healthy kidneys—doesn’t cure the underlying disease. A patient has to undergo dialysis 2 or 3 times a week, depending on the severity of the problem. The procedure costs Rs 6,000-9,000 a week; whereas it costs around Rs 400,000-500,000 to transplant a kidney.
The government made dialysis and kidney transplant services free from 2016-2017 and the services are now being provided in over 50 private and government hospitals across Nepal. For a single patient, the government bears almost Rs 550,000 on kidney transplant and Rs 2,500 per dialysis. The total yearly subsidy comes to over Rs 1 billion a year.
“There have been no recent studies but I believe the government initiative has encouraged more people to seek treatment, which has saved many lives,” says Dr Pukar Chandra Shrestha, Executive Director of Human Organ Transplant Center (HOTC) at Bhaktapur.
Many patients, few machines
But according to data from the Department of Health Services (DOHS), until May 14, 2018, there were only 410 dialysis machines providing completely free services. The patients outnumber the machines by a huge margin.
“Every day, the number of patients is increasing whereas the number of machines remains constant,” says Dr Rajani Hada, Head of Kidney Department at the government-run Bir Hospital. “Also, the existing machines are occupied by old patients who need continuous treatment, sometimes preventing the new patients from enrolling.” According to Hada, a dialysis session lasts around four hours and even if the hospital manages to work in three shifts on a single machine, only three people can receive the treatment per day.
Jung Bahadur Thapa Magar, a patient who recently got a kidney transplant at HOTC, chose to ignore the free service and opted to pay out of his own pocket so he could receive timely treatment.
“It takes around 1-2 months to complete the formalities for free services,” says Magar. “Even after that, there is no guarantee of timely service.”
Government officials corroborate his claim. “It takes a minimum of four months to provide the money to the victim,” says Prakash Ghimire, an officer at the DOHS. “The decision-making is dismally slow in our health bureaucracy.”
There are currently more than 450 patients registered for free dialysis at HOTM, many of them on the waiting list. New enrollments have been cancelled as there are not enough dialysis machines to meet the demand. Many of the existing machines are not functional or only partly so. In Bir Hospital, 19 dialysis machines lie unused because there aren’t enough trained human resources.
The medicines are expensive too. The government provides almost Rs 150,000 to every kidney patient to buy medicines after a transplant. But often that is not enough. In order to protect the newly transplanted kidney, a patient has to rely heavily on medicines. The monthly bill for medicines comes to around Rs 20,000-25,000 for a couple of years after the transplant. Gradually, the cost decreases to Rs 10,000-12,000 a month, which is still expensive considering that the patients have to consume medicines all their lives.
Bimala Basnet’s 14-year-old daughter Binisha has been undergoing dialysis for two years. Basnet, who sells fruits inside the HOTC premises, has an unpleasant impression of transplant. “I’ve only seen transplant end people’s lives. I don’t recommend it unless the patient’s family has at least Rs 500,000 in reserve,” she says.
Ghimire of DOHS feels providing medicines to hospitals would be more effective than giving cash to the victims, and says that a review of the existing mechanism is already underway.
Prevention is cure
Nephrologists are pushing the idea of kidney transplant as a permanent cure, but lack of human resources and infrastructure and unclear rules are major hurdles. As per government rules, only relatives can donate a kidney to a patient.
“This limits the availability of healthy kidneys. Moreover, kidneys may not match even among relatives, and older people’s kidneys are not healthy enough,” says Dr Dibya Singh Shah, Professor and Head of Department of Nephrology at the Tribhuvan University Teaching Hospital in Maharajgunj. According to a DOHS report (July 16, 2016-May 14, 2018), only 203 could get new kidneys in the period.
Health practitioners in the field blame the government for introducing the free services without proper homework. Renal diseases can be easily cured if diagnosed early, they say, and yet there is no initiative in early diagnosis and prevention.
The average cost for a kidney test is only Rs 300. Health practitioners believe that establishing health clinics across the country and promoting regular check-ups is the right way to go about it. Also, there is a need to decentralize dialysis services away from major cities.
“Those with dysfunctional kidneys need lifelong dialysis. How can a poor person afford it?” Shah asks rhetorically. “If only the focus shifted to prevention, things would be much better. Until then, it’s a vicious circle of medications and surgeries.”
With the number of kidney patients steadily rising in what is still a poor country, how long the government will continue to support kidney patients is also an open question.
Nepali given capital punishment in Qatar
Anil Chaudhari, the 23-year-old son of Gita Devi Chaudhari and Shyam Kishor Chaudhari, has been sentenced to death in Qatar. “Please save our son. We’ve heard he’s being executed. He’s our only son,” Gita Devi and Shyam Kishor beseech anyone who visits their home in Aurahi Municipality-1 in Mahottari, a district in the central plains. They frequently break down and weep, or make a plea to God. Besides Anil, Gita Devi and Shyam Kishor have two daughters, both of whom are married. The Chaudhari family is in profound anxiety ever since Anil, who went to Qatar three years ago as a migrant worker, was sentenced to death by firing squad on the charge of murdering and robbing a Qatari national Umair Mohammed Umair Al Ramzani Al-Nauimi. Anil used to work as a general laborer in a car wash company.
Just before his arrest 14 months ago, Anil was planning on returning home within a year. Before the death verdict, his family was under the impression that he had committed a misdemeanor. He had told his family that he hadn’t done anything wrong and that he had been held for investigation. Anil’s parents were therefore hopeful that he would be eventually be released.
He still talks to them on the phone. “I won’t live. I won’t be able to come home,” Anil tells his parents. “We don’t cry on the phone, because if we do, he will too. So we maintain poise and talk cheerfully with him to boost his confidence,” says Shyam Kishor. “He is our only hope for old age; we haven’t been able to think straight.”
“We pray to God day and night and implore the Nepal government to get our son free. In return, we are willing to give all our property to the government,” says a grief-stricken Shyam Kishor.
Shyam Kishor and Gita Devi had taken a loan of Rs 150,000 to send Anil to Qatar. The couple live in a rented room after their house was damaged. They have some land and run a small shop in a pushcart. But ever since Anil’s conviction, they have can neither focus on their business nor take good care of their health. The worry has made them emaciated.
They had dreams of building a new house after Anil’s return. They were also looking for a bride for him. Such dreams have been dashed. Shyam Kishor has already spent around Rs 60,000 on his trips to Kathmandu to knock on the government’s doors and beg for his son’s life. He is not ready to give up yet, even if that means he has to take more loans.
The Nepali embassy in Qatar is coordinating with the Ministry of Foreign Affairs to make an appeal on Anil’s behalf. The embassy has filed a case in Qatar’s appellate court.
What thaw in Indo-China ties means for Nepal
The recent India-China rapprochement has been intriguing to observe from here in India. Open a random newspaper or flip through the TV news channels, and there is bound to be a news story on how India and China have decided to ‘cooperate’ rather than ‘compete’. Most recently, Indian Prime Minister Narendra Modi, while speaking at the Shangri-La Dialogue forum in Singapore, made it clear that India pursues an independent foreign policy and does not believe in joining any (read: pro-US) bloc. But in the next breath, he added that India is firmly in favor of unhindered and open navigation in South China Sea. This was in reference to what India and the West see as China’s ‘militarization’ of this vital global trade route.
Interestingly, the very next day, He Lei, a top Chinese general who was heading the Chinese delegation at the forum, termed Modi’s rather blunt statement on South China Sea ‘positive’. There clearly are renewed efforts to defuse old Indo-China tensions, even if the leaders of the two countries sometimes have to say provocative things to please their domestic constituencies. These efforts stem largely from the realization that only if the two Asian powers work together can they effectively counter Donald Trump’s protectionist tendencies.
As Prime Minister KP Sharma Oli is set to embark on his official trip to the northern neighbor, what does this thawing of Indo-China ties entail for Nepal? If there is a level of understanding between Modi and Chinese President Xi Jinping on how to deal with other smaller countries in the neighborhood, it could mean India would have fewer qualms about Nepal reaching out to China.
But therein lies the danger. As happened with the 2015 Indo-China bilateral agreement on the Lipulekh tri-junction, vital issues of Nepal’s interest may increasingly be decided in Beijing and New Delhi. In the dealings between big powers, the interests of smaller players can often be ignored. This is why the Nepali foreign policy apparatus as well as PM Oli will have to be proactive in maintaining open and extensive channels of communication with both India and China.
In his second term as prime minister, Oli has been largely successful in performing the delicate balancing act between India and China. But unless our foreign ministry apparatus is also strengthened to quickly respond to emerging foreign policy challenges, and to come up with long-term strategies to back the prime minister’s international outlook, his efforts alone may prove inadequate o
The highs and lows of the new federal budget
The federal budget unveiled on May 29 by Finance Minister Yubaraj Khatiwada has expanded revenue base and emphasized job creation, with the ultimate goal of improving the lives of ordinary citizens. In other words, the budget attempts to make positive changes in the lives of low-income people by taxing high- and middle-income individuals. While individuals with annual income of over Rs 2 million have to pay a high tax rate, those earning below Rs 400,000 have to pay only 1 percent income tax. In fact, the budget tries to change other forms of taxation, not just income tax. Such amendments are aimed at bringing everyone into the tax bracket. This entails not just more transparency in financial transactions but also systematizing them through banking channels.
In a society with a huge informal economy, the budget tries to convey another message as well: stop over-consumption. The hike in excise duties on motorbikes with engine capacity higher than 150cc and other vehicles over 1000cc capacity hints at this message. This has reinforced the old mentality that vehicles are luxury items.
The auto sector, which contributes annual taxes worth some Rs 1 billion, had been slowly collapsing after the tightening of auto loans in 2017. The budget has dealt another blow to the sector. Anjan Shrestha, former chairman of Nepal Automobiles Dealers’ Association, says, “We may not be able to rise again. This budget has wrecked our sector.”
Tightening the screws
The auto sector is but one example; the budget has caused many other entrepreneurs to lose sleep. The private sector in general will bear the brunt of the changes in taxation. The first hint of it came right after Khatiwada was appointed finance minister, when he issued an instruction to tighten customs procedures. Implicit in his instruction was the intent to stop indiscriminate imports, which have increased significantly in recent times.
Khatiwada also made life difficult for small businesses that were already in dire straits since the Goods and Services Tax (GST) came into effect in India in July 2017. The finance minister’s thinking is also reflected in his encouragement of the use of letters of credit. In other words, he wanted to curb import transactions carried out through other payment methods besides a letter of credit.
Finance Minister Yubaraj Khatiwada acknowledges that implementing the budget is a challenge. In a review session on May 30, a day after the budget, he said, “Businesses have to pay their due to the state. Those who don’t fulfil their responsibilities will be made to do so from now on.” He added that tax evasion has been categorized as financial crime and those committing it won’t be spared.
Despite many improvements in the taxation system, the revenue collection won’t be enough to finance current expenditure. This will exert heavy pressure on the government’s current account from the very first day of the upcoming fiscal. The current account is already strained as the national budget has to be allocated to three tiers of government. Data from the central bank indicate that in the first nine month of the current fiscal, the country is running a current-account deficit of Rs 171 billion. The economy will face further complications if rising imports cannot be curbed.
The production equation
Economist Madan Kumar Dahal thinks that the budget tries to incorporate all sectors. Nonetheless, “the 8 percent growth target will be difficult to achieve without a 40 percent capital expenditure. Because the revenue collection won’t be enough for even regular expenditures, high domestic and foreign loans will be necessary,” he says. The budget has set a target of 23.9 percent capital expenditure for the next fiscal, 0.1 percent lower than the current fiscal’s capital expenditure.
In the review session, Khatiwada said that the budget rolls out red carpet for investors in export-oriented industries. But although the finance minister stresses export promotion to reduce the country’s ballooning trade deficit, the task is easier said. Instead of focusing on export promotion, it might be better to raise domestic production in order to reduce imports.
In a meeting of the Nepal Communist Party Parliamentary Committee held on May 30, Prime Minister KP Sharma Oli extolled the budget, claiming that it was the best-ever. “This budget will help the country acquire a ship and will bring railway lines to Kathmandu.” He asked everybody to lend their support to the budget, which he argued paves the way for prosperity and, ultimately, socialism.
Others, however, are less sanguine.
Former vice-chairman of the National Planning Commission Govinda Raj Pokharel thinks that the budget has spoilt the country’s investment climate. “The taxation system is unreasonably harsh on the private sector. This won’t help boost private investment,” he says.
To increase investment, the government, the private sector and the international trade organizations all have important roles to play. Attracting foreign investment calls for a favorable investment climate. Former finance minister Ram Sharan Mahat thinks the budget has completely failed on that front. He also thinks that an 8 percent growth rate is talk only.
Flying horse, crawling snail
Former Prime Minister Baburam Bhattarai derided the budget by comparing it to a famous children’s game (one in which they expect a fish but get a frog instead). Immediately after the conclusion of the budget speech, he tweeted, “In all respects, this budget is a continuation of previous ones. What was needed was structural change to make a leap toward prosperity. That was seen neither in revenue collection and domestic and foreign investments, nor in regional allocation and devolution of authority to provincial or local levels.”
As Bhattarai claims, the federal budget incorporates even the tasks that the constitution has devolved to the local level government, such as the construction of zoos, tourist trails and handicraft exhibition centers. Such provisions, coupled with frugal capital expenditures, indicate that the budget is populist.
Nepali Congress came down heavily on the budget. “On the campaign trail, the parties heading this government claimed that the NC’s economic policies were flawed. But this budget is a strange hodgepodge of NC’s policies and communist orthodoxies,” NC central working committee concluded a day after the budget’s announcement. “It promises to be a flying horse, but one that delivers results at a snail’s pace.”
BY SHREEDHAR KHANAL | Kathmandu